Latam Thyroid Cancer Leader Group Summit Report

On July 15 the President of the TCA, Soledad Rodriguez Perea, and the representatives of ACTIRA from Argentina, ACTIPERU from Peru and ACOLCAT from Colombia, participated in the 2016 Latam Thyroid Cancer Leader Group Summit. This is the second annual meeting organized by Genzyme Sanofi and took place at Buenos Aires, Argentina. Completing the list of organizations, there were leaders of Clube T4 from Brasil, ANASOVI from Costa Rica and Edificando Vidas Foundation from El Salvador.

Every country shared their experiences in their own organization and presented the thyroid cancer diagnosis and treatment situation, including the medical system and health access, as well as the identified needs and the assessing patient association outcomes.

Soledad Rodriguez explained the TCA activities and the results of the work these past years. She also mentioned the new scenarios and new material approach to come.

In the afternoon, there was a training on “Patient Group Capacity Building: Challenges of Project/Advocacy Work & Fundraising”. During the day, the group discussed on how to strengthen the network of patient groups.

The Summit was a great opportunity to share experiences, get to know the similar and different aspects of every country situation and to help the organizations to develop in a sustainable way.