15 May Patient representatives meet in Amsterdam
Representatives of several European patient organisations – Vivre sans Thyroïde, AECAT, Thyroid Cancer Support Group Wales, Schildklier Organisatie Nederland, and the British Thyroid Foundation – met in Amsterdam in May at a ‘patient advisory board’ meeting organised and hosted by Genzyme. The participants included Beate Bartes, Helen Hobrough, Marika Porrey, Cristina Chamorro, and Judith Taylor.
A special guest was Teodora Kolarova of the Bulgarian cancer patient organization APOZ and Friends and a member of the Board of Directors of the International Neuroendocrine Cancer Alliance. APOZ and Friends is one of the recipients of the 2014 Genzyme Patient Advocacy Leadership (PAL) Awards.